JASPER Early Intervention for Tuberous Sclerosis
The investigators are running an intervention study for young children with Tuberous Sclerosis Complex (TSC). The study will include free play-based behavioral intervention that may improve social and communication skills in children with TSC. Eligible families will have a child in the age range of 12-36 months, with a diagnosis of TSC. A parent must also be available to attend intervention and assessment sessions at the research site (UCLA or BCH). The intervention will focus on teaching caregivers skills to improve the social and communication outcomes of their children. The content of the intervention will be individually tailored to the child's developmental level. The intervention involves 4 on-site assessment visits, and 12 weekly intervention sessions. The intervention focuses on improving social-communication and play skills.
Study Start Date
October, 24 2017
Estimated Completion Date
- Behavioral: JASPER
University of California, Los Angeles -- IRB #17-000262
University of California, Los Angeles
- A confirmed diagnosis of Tuberous Sclerosis Complex
- A mental age less than 6 months. A plan for epilepsy surgery during the study participation period.
6 Months to 40 Months
Accepts Healthy Volunteers
Study Locations and Contact Information (2)
|Boston Childrens Hospital - Boston, Massachusetts||2.4 miles||Jack Keller||857-218-3010||Jack.Keller@childrens.harvard.edu|
|University of California Los Angeles - Los Angeles, California||2,592.9 miles||Carly Hyde BSemail@example.com|