Development of a Resiliency Training Program for Parents of Children With Autism Spectrum Disorder

Description

This study has three aims: Phase I: Through focus group interviews with expert clinicians, leaders of organizations, and parents with children with ASD, this study aims to identify the psychosocial needs of parents of children with ASD, specifically a) the types of concerns that parents find most difficult and stressful b) areas of concern that lack support and resources, and c) areas of need for education and skill training. This study also aims to gather feedback on the Benson-Henry Institute's Relaxation Response Resiliency Program (3RP). Phase II: Informed by Phase I findings, this study aims to develop and determine the feasibility and acceptability of a virtual 8-session Relaxation Response Resiliency (3RP) program for parents of children with ASD. Phase II: This study also aims to test the effectiveness of a pilot wait-list control trial, establishing efficacy of a virtual resiliency program.

Study Start Date

December, 01 2016

Estimated Completion Date

January 2018

Interventions

  • Behavioral: Relaxation Response Resiliency Program for Parents of Children with ASD

Study ID

Massachusetts General Hospital -- 2016P002037

Status

Recruiting

Trial ID

NCT02995408

Study Type

Interventional

Trial Phase

N/A

Enrollment Quota

60

Sponsor

Massachusetts General Hospital

Inclusion Criteria

    1. Being the parent of at least one child with a diagnosed autism spectrum disorder 2. Age 18 or older

Exclusion Criteria

    1. Unable or unwilling to sign the informed consent documents

Gender

All

Ages

18 Years and older

Accepts Healthy Volunteers

Accepts Healthy Volunteers

Study Locations and Contact Information (6)

Study Location Distance Name Phone Email
Massachusetts General Hospital - Boston, Massachusetts 2.4 miles Karen Kuhlthau PhD 617-724-2842 kkuhlthau1@PARTNERS.ORG
Massachusetts General Hospital - Boston, Massachusetts 2.4 miles Karen Kuhlthau PhD 617-724-2842 kkuhlthau1@PARTNERS.ORG
Massachusetts General Hospital - Boston, Massachusetts 2.4 miles Karen Kuhlthau PhD 617-724-2842 kkuhlthau1@PARTNERS.ORG
Massachusetts General Hospital - Boston, Massachusetts 2.4 miles Karen Kuhlthau PhD 617-724-2842 kkuhlthau1@PARTNERS.ORG
Massachusetts General Hospital - Boston, Massachusetts 2.4 miles Karen Kuhlthau PhD 617-724-2842 kkuhlthau1@PARTNERS.ORG
Massachusetts General Hospital - Boston, Massachusetts 2.4 miles Karen Kuhlthau PhD 617-724-2842 kkuhlthau1@PARTNERS.ORG

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